Cours francophone CIRC/AIRTUM sur l`enregistrement des cancers

Cours francophone CIRC/AIRTUM sur l'enregistrement des cancers
et l'analyse des données
Caire, Egypte, 22-29 Novembre 2011
Course Report
The course was developed and organised jointly by the International Agency for Research
on cancer (IARC) and the Italian Association of Cancer Registries (AIRTUM). A grant from
the Italian Ministry of Health (EUROMED) has provided financial support to an AIRTUM
initiative to facilitate collaborations between cancer registries in the Mediterranean
region.This funding supported participants from North African countries and faculty
members from Italy. The US National Cancer Institute financially supported several
participants from Sub-Saharan countries and support was also received Reseau Francais
des Registres de Cancer (FRANCIM). Faculty attendance on the course was partially
supported by a Technology Transfer Fellowship award from the Union for International
Cancer Control (UICC).
Participation was completely free for those admitted to the course.
The successful organisation of the course was made possible by competent and efficient
collaboration with the WHO/EMRO office in Cairo (course venue). Support was also
received from the WHO/AFRO office. Ms Sue Anthony, IARC/COR, coordinated all
logistical aspects related to the course, liaising with staff in the EMRO Office.
Aims and content
Cancer registration is a basic element of cancer control, making possible the rational use of
resources as well as the identification of areas in need of research. In Africa and the Middle
East several new registries have been set up in the last decade where they are currently
the only source of information on the size, nature and evolution of the local cancer problem,
they are therefore a key tool to develop a cancer control plan and monitor its
implementation.
The main aim of the course was to strengthen skills in evaluating data quality and in using
recorded data to inform local policy makers and health professionals. It was therefore
primarily directed at staff of operational registries that have produced and published,
perhaps only locally, incidence data. The main topics covered were: uses of cancer
registry data, elements of an effective cancer registration process, evaluating data
completeness and quality, computing and comparing rates and other measures of
occurrence, reporting results, informing stakeholders and contributing to planning cancer
control.
Training included the implementation of all registry functions by means of the IARC
CANREG5 (including migration from CanReg4 to CanReg5) and data analyses by means
of the SEERStat software. Participants were encouraged to bring their own data and
laptop, and use them to practice during the course.
Faculty and Detailed Programme: see annex1
Target participants and requirements
The programme aimed to provide training to both senior and junior personnel of existing
population-based registries that had already accrued some years of incidence data and
preferably were existing CANREG users. Participants were required to have basic
computer skills and have practical familiarity with registration principles.
The working language of the course was French; only staff fluent in this language or at
least with excellent comprehension were admitted to the course.
There were 20 participants from 11 countries and 13 registries. Three registered staff
cancelled at the last minute (they were from Fez, Morocco, and Annaba, Algeria).
The list of attendees is reported in annex 2.
Course evaluation
The degree of satisfaction of participants was evaluated by means of a questionnaire.
Most participants reported a high degree of overall satisfaction (scored 7-9 on a 1-9 scale),
with very few exceptions.
Presentations and discussions sessions were much appreciated on all themes:
international registration rules, evaluation of data quality, preparation of reports, and use of
data for cancer control policies.
Free material and software (all provided in electronic form) were rated high.
Practical sessions on the use of CanReg software had a lower average score (5.7) with
wide variation (1 to 9). This reflects, in part, heterogeneity of the participants with respect to
computer skills, but also the presence of a few non-CanReg users who did not benefit from
sessions on migration from version 4 to version 5 (Tunisia). These participants nonetheless
were willing to adopt CanReg5 and learn how to set up their system. Attenders from the
cancer registry of Rabat, Morocco, were particularly satisfied with the software and the
opportunity to implement its use in their registry.
In future iterations of the course, practical sessions should be organized separating the
demonstration of software from individual practice allowing sufficient time for the latter, and
followed by plenary review possibly led by participants themselves.
One representative of each registry gave a short presentation of their data at the end of the
course.
All the course material, presentations (including those of particpants), software, text books
and exercises, was distributed to participants on two CDs in electronic form and is part of
the documentation of the course.
ANNEX 1
Cours francophone CIRC/AIRTUM sur
l'enregistrement des cancers et l'analyse des
données
Le Caire, Egypte, 22–29 novembre 2011
PROGRAMME
ASSOCIAZIONE ITALIANA
REGISTRI TUMORI
AIRTUM ONLUS
Professeurs
Adresse
Ettore Bidoli (EB)
IRCCS Centro di Riferimento
Oncologico, Aviano / AIRTUM
Aviano, Italie
Morten Ervik (ME)
Section Données du Cancer
CIRC, Lyon
David Forman (DF)
Charles GombéMbalawa (CG)
Cecile Ingabire (CI)
Karine Ligier (KL)
Jean-Michel Lutz (JML)
Paola Pisani (PP)
[email protected]
[email protected]
Section Données du Cancer
CIRC, Lyon
[email protected]
Registre des Cancers de Brazzaville
Service de Médecine et Carcinologie
CHU Brazzaville
Congo
[email protected]
Cancer Registry of Rwanda
Women’s Equity in Access to Care &
Treatment
Dorona House, Avenue Kalisimbi
P.O. BOX 5141 Kigali
Rwanda
[email protected]
Registre général des cancers de Lille et
de sa région/FRANCIM
Loos, France
[email protected]
Récipiendaire de la Bourse de Transfert
de Compétences, CIRC, Lyon
Childhood Cancer Registry of
Piedmont/AIRTUM
Torino, Italie
Catherine Sauvaget
(CS)
Groupe Dépistage, CIRC, Lyon
Diego Serraino (DS)
IRCCS Centro di Riferimento
Oncologico, Aviano / AIRTUM
Aviano, Italie
Bakary Sylla (BS)
Adresses emails
Groupe Biologie des
Infections et cancer, CIRC, Lyon
[email protected]
[email protected]
[email protected]
[email protected]
[email protected]
Programme
Le cours commence à 08.00 chaque jour et se termine à 16.00. Les pause-café seront à 10.00 et
14.30, et le déjeuner à 12.00.
Mardi 22 novembre
Introduction du cours et des participants
L’intérêt des registres de population du cancer :
utilisations et objectifs
Revue des registres représentés
Données clés : date d’incidence, âge, sexe,
domicile
Autres données souhaitables,
lien entre les enregistrements
CIM-O, CIMs, CICE
Travaux pratiques
D Serraino, JM Lutz, P Pisani,
M Ervik, C Ingabire
DS
JML/PP et les participants
JML
JML
PP
JML, PP
Mercredi 23 novembre
Introduction à CanReg5
Installation du software
Migration de CanReg4 à CanReg5
Travaux pratiques incluant l’export
vers SEER*Stat
Stade : TNM, AJCC, résumé et base
de diagnostic SEER
Travaux pratiques (TP)
ME
ME, CI, PP
ME, CI, PP
ME, CI, PP, JML
JML
JML, PP, DS
Jeudi 24 novembre
TP : CanReg5 – Inspection, saisie de données
et vérifications
TP : CanReg5 – Recherche de personnes,
tumeur primaires multiples
Edition du dictionnaire / import
Backup/ Installation / Restauration
Certificats de décès
Tumeurs multiples
Contrôle qualité
TP : CanReg5 – Analyses : fréquences/export
incluant l’export vers SEER*Stat
TP : Evaluer la qualité
Vendredi 25 novembre
Libre
ME, CI, PP
JML
JML
PP
ME, CI, PP
PP, JML
Programme (suite)
Samedi 26 novembre
Taux et fréquences
Dénominateurs des populations :
sources et estimations
Comparaisons externes (La collection CI5)
TP : Taux et fréquences avec Excel
TP : CanReg5 – analyses : tables d’incidence
TP : Analyses avec SEER*Stat
EB
EB
EB/PP
EB, PP, JML
ME, CI, PP
EB, PP, JML, KL
Dimanche 27 novembre
Les composants du contrôle du cancer :
La prévention
La détection précoce
Elaborer un rapport
Tables et graphiques
Commentaires
TP : Plan et ébauche d’un rapport
à partir de données propres
Gestion du système
JM Lutz
Catherine Sauvaget
Karine Ligier
KL
KL
KL, JML, EB
ME, CI, PP
Lundi 28 novembre
Les composants du contrôle du cancer :
Biologie du cancer
Gestion
Planification de la prévention et de
services d’oncologie, à partir de données
d’incidence
Planification du contrôle du cancer et des
maladies non transmissibles en Afrique,
le rôle de surveillance et les registres
Lecture critique d’articles et discussion
B Sylla
Charles Gombè
CG
J.-M. Dangou
Mardi 29 novembre
Présentations par les participants et discussions
Evaluation du cours et réactions
Priorités des registres Francophones en Afrique
Clôture du cours
Les participants et les professeurs
Les participants et les professeurs
Les participants et les professeurs
DF
List of participants – Cairo Course 29 novembre 2011 final
ANNEX 2
Algeria
Setif
Congo
Monsieur le Docteur Mahnane Abbes
Epidemiologiste
Registre du cancer de Setif
Service Epidemiologie et Prevention
Hopital Mere Enfant
CHU de Setif
Setif 19000
Algérie
[email protected]
Monsieur Gérard Ibara
Registre des cancers de Brazzaville
Service de Médecine et Carcinologie
13 Bd Maréchal Lyautey
B.P. 32
CHU Brazzaville
Congo
[email protected]
Alger
Madame le Docteur Sabrina Maraf
Registre des tumeurs d'Alger
INSP-04-Chemin El Bakr
El Biar
Alger
Algérie
[email protected]
Monsieur Mohamed Namaoui
Registre des tumeurs d'Alger
Institut National de Santé Publique
04 chemin el Bakr El Biar
Alger 16000
Algérie
[email protected]
Cameroon
Monsieur le Docteur Paul Ndom
Chef, Service Oncologie
Hôpital Général Yaoundé
BP 5408 Yaoundé
Cameroun
[email protected]
Monsieur le Docteur George Enow Orock
Chef, service Anatomopathologie
Hôpital Général Yaoundé
BP 5408 Yaoundé
Cameroun
[email protected]
Monsieur le Professeur Jean Félix Peko
Laboratoire d’Anatomie-Pathologique
13 Bd Maréchal Lyautey
B.P. 32
CHU Brazzaville
Congo
[email protected]
Egypt
Mr le Docteur Mohamed Sabry Bakry
5 AL Ministerly Towers
AL Bahr AL A'zam st.
Giza 12516
Egypt
[email protected] (primary)
[email protected],
Gaza
Monsieur le Docteur Khaled Abu Samaan
Ministry of Health
Alwehda St.
Al-Remal clinic
Primary health care administration
Pharmacy directorate
Palestinian National Authority
Gaza Strip - Gaza
[email protected]
Madame le Docteur Amal Shahwan
Ministry of Health
Gaza City
[email protected]
Guinea
Monsieur le Docteur Ibrahim Sidiki Kabba
Registre des cancers de Guinée
Conakry BP 4152
Guinée
[email protected]
Mali
Monsieur le Docteur Bourama Coulibaly
Registre du cancer du Mali
Service d'anatomie pathologique du CHU
Hôpital du Point G
BP 333
Bamako
Mali
[email protected]
Monsieur le Docteur Brahima Mallé
Registre du cancer du Mali
Service d'anatomie pathologique du CHU
Hôpital du Point G
BP 333
Bamako
Mali
[email protected]
Morocco
Monsieur le Docteur Abdelouahed Erraki
Registre des cancers de Rabat
Institut National du Cancer
Avenue Allal El Fassi
BP. 6312 RI
Rabat
Maroc
[email protected]
Monsieur le Docteur Mohamed Adnane Tazi
Registre des cancers de Rabat
Institut National du Cancer
Avenue Allal El Fassi
BP. 6312 RI
Niger
Monsieur le Professeur Hassan Nouhou
Registre des cancers
B.P.10896 Niamey
Niger
[email protected]
Rwanda
Monsieur le Docteur Jean Claude Dusingize
Women's Equity in Access to Care &
Treatment (WE-ACTx)
Dorona House, Avenue Kalisimbi
PO Box 5141
Kigali
Rwanda
[email protected]
Tunisia
Madame Dr Wided Hize Ayoub
Epidémiologiste-tabacologue
Service d’épidémiologie et d'informatique
médicale
Registre des cancers Nord Tunisie
Institut Salah Azeiz
Tunis
Tunisie
[email protected]
Mme Lilia Jaidane-Elamri
Département de Pathologie
Registre du Cancer du Centre Tunisien
C.H.U. F. Hached
Rue Dr Moro
4002 Sousse
[email protected]
Melle Nabiha Missaoui
Département de Pathologie
Registre du Cancer du Centre Tunisien
C.H.U. F. Hached
Rue Dr Moro
4002 Sousse
[email protected]
Rabat
Maroc
[email protected]