Cours francophone CIRC/AIRTUM sur l`enregistrement des cancers

Cours francophone CIRC/AIRTUM sur l'enregistrement des cancers
et l'analyse des données
Caire, Egypte, 22-29 Novembre 2011
Course Report
The course was developed and organised jointly by the International Agency for Research
on cancer (IARC) and the Italian Association of Cancer Registries (AIRTUM). A grant from
the Italian Ministry of Health (EUROMED) has provided financial support to an AIRTUM
initiative to facilitate collaborations between cancer registries in the Mediterranean
region.This funding supported participants from North African countries and faculty
members from Italy. The US National Cancer Institute financially supported several
participants from Sub-Saharan countries and support was also received Reseau Francais
des Registres de Cancer (FRANCIM). Faculty attendance on the course was partially
supported by a Technology Transfer Fellowship award from the Union for International
Cancer Control (UICC).
Participation was completely free for those admitted to the course.
The successful organisation of the course was made possible by competent and efficient
collaboration with the WHO/EMRO office in Cairo (course venue). Support was also
received from the WHO/AFRO office. Ms Sue Anthony, IARC/COR, coordinated all
logistical aspects related to the course, liaising with staff in the EMRO Office.
Aims and content
Cancer registration is a basic element of cancer control, making possible the rational use of
resources as well as the identification of areas in need of research. In Africa and the Middle
East several new registries have been set up in the last decade where they are currently
the only source of information on the size, nature and evolution of the local cancer problem,
they are therefore a key tool to develop a cancer control plan and monitor its
implementation.
The main aim of the course was to strengthen skills in evaluating data quality and in using
recorded data to inform local policy makers and health professionals. It was therefore
primarily directed at staff of operational registries that have produced and published,
perhaps only locally, incidence data. The main topics covered were: uses of cancer
registry data, elements of an effective cancer registration process, evaluating data
completeness and quality, computing and comparing rates and other measures of
occurrence, reporting results, informing stakeholders and contributing to planning cancer
control.
Training included the implementation of all registry functions by means of the IARC
CANREG5 (including migration from CanReg4 to CanReg5) and data analyses by means
of the SEERStat software. Participants were encouraged to bring their own data and
laptop, and use them to practice during the course.

Faculty and Detailed Programme: see annex1
Target participants and requirements
The programme aimed to provide training to both senior and junior personnel of existing
population-based registries that had already accrued some years of incidence data and
preferably were existing CANREG users. Participants were required to have basic
computer skills and have practical familiarity with registration principles.
The working language of the course was French; only staff fluent in this language or at
least with excellent comprehension were admitted to the course.
There were 20 participants from 11 countries and 13 registries. Three registered staff
cancelled at the last minute (they were from Fez, Morocco, and Annaba, Algeria).
The list of attendees is reported in annex 2.
Course evaluation
The degree of satisfaction of participants was evaluated by means of a questionnaire.
Most participants reported a high degree of overall satisfaction (scored 7-9 on a 1-9 scale),
with very few exceptions.
Presentations and discussions sessions were much appreciated on all themes:
international registration rules, evaluation of data quality, preparation of reports, and use of
data for cancer control policies.
Free material and software (all provided in electronic form) were rated high.
Practical sessions on the use of CanReg software had a lower average score (5.7) with
wide variation (1 to 9). This reflects, in part, heterogeneity of the participants with respect to
computer skills, but also the presence of a few non-CanReg users who did not benefit from
sessions on migration from version 4 to version 5 (Tunisia). These participants nonetheless
were willing to adopt CanReg5 and learn how to set up their system. Attenders from the
cancer registry of Rabat, Morocco, were particularly satisfied with the software and the
opportunity to implement its use in their registry.
In future iterations of the course, practical sessions should be organized separating the
demonstration of software from individual practice allowing sufficient time for the latter, and
followed by plenary review possibly led by participants themselves.
One representative of each registry gave a short presentation of their data at the end of the
course.
All the course material, presentations (including those of particpants), software, text books
and exercises, was distributed to participants on two CDs in electronic form and is part of
the documentation of the course.

ANNEX 1
Cours francophone CIRC/AIRTUM sur
l'enregistrement des cancers et l'analyse des
données
Le Caire, Egypte, 22–29 novembre 2011
PROGRAMME
ASSOCIAZIONE ITALIANA
REGISTRI TUMORI
AIRTUM ONLUS

Professeurs
Adresse Adresses emails
Ettore Bidoli (EB)
IRCCS Centro di Riferimento
Oncologico, Aviano / AIRTUM
Aviano, Italie
[email protected]
Morten Ervik (ME)
Section Données du Cancer
CIRC, Lyon
[email protected]
David Forman (DF) Section Données du Cancer CIRC, Lyon
[email protected]
Charles Gombé-
Mbalawa (CG)
Registre des Cancers de Brazzaville
Service de Médecine et Carcinologie
CHU Brazzaville
Congo
[email protected]
Cecile Ingabire (CI)
Cancer Registry of Rwanda
Women’s Equity in Access to Care &
Treatment
Dorona House, Avenue Kalisimbi
P.O. BOX 5141 Kigali
Rwanda
[email protected]
Karine Ligier (KL)
Registre général des cancers de Lille et
de sa région/FRANCIM
Loos, France
[email protected]
Jean-Michel Lutz (JML) Récipiendaire de la Bourse de Transfert de Compétences, CIRC, Lyon
[email protected]
Paola Pisani (PP)
Childhood Cancer Registry of
Piedmont/AIRTUM
Torino, Italie
[email protected]
Catherine Sauvaget
(CS) Groupe Dépistage, CIRC, Lyon [email protected]
Diego Serraino (DS)
IRCCS Centro di Riferimento
Oncologico, Aviano / AIRTUM
Aviano, Italie
[email protected]
Bakary Sylla (BS) Groupe Biologie des
Infections et cancer, CIRC, Lyon
[email protected]